My 5 year old son Jimmy has a rare seizure disorder called an intractable epileptic encephalopathy. Some days it completely incapacitates him, but other days he is alert and playful. He endures a strict medical diet, takes medications 7 times a day, and makes frequent trips to hospitals. Despite it all, he is joyful. He is a seizure warrior. I am blessed to be the father of such a fighter and I want to do something to fight alongside him.
I'm joining Gear Up for Epilepsy to make a difference in the lives of people living with epilepsy, people like Jimmy. It is inspired by a young cyclist, Charlie, who dreamed of riding with his father across the United States. Unfortunately, he would not be able to accomplish that dream as his ride was cut short by SUDEP (Sudden Unexplained Death from Epilepsy) in August of 2016. Every year, 3,000 people in the United States die from SUDEP. To celebrate Charlie’s memory, Charlie’s parents, Clif and Arleen, will depart on a 2-month cross-country bicycle trek that their son dreamed of accomplishing on June 18th, 2017
I’m going to ride at least 76 mile by June 17th to support them and the Epilepsy Foundation. The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Hopefully even save Jimmy’s life.
Please support this cause by making a safe and secure donation to my fundraising webpage. Giving to the Epilepsy Foundation means you make the world a better, easier, more manageable place for the 3 million people in the U.S. who are living with epilepsy and seizures. You support Jimmy and all the families like ours that battle seizures every day.
If you’d like to keep up with Jimmy’s progress, you can read Mary Beth’s updates at: