I am raising funds to make a difference in the lives of people living with epilepsy. The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
My family’s journey with epilepsy started in 2014. We were visiting Philadelphia ahead of a move to the city when my son had his first focal seizure. The first seizure is always the scariest, largely because it comes out of the blue and you never know what to expect or what to do when it happens.
His second seizure came as my wife and son were boarding a plane. The flight attendants cleared the aisle and an ambulance took them to the children’s hospital where he was officially diagnosed with epilepsy.
Since then, we have had a lot of ups and downs. We’ve spent months in the hospital, tried countless epilepsy medications, started the ketogenic diet, explored CBD, and we’re still trying to figure out what is causing the seizures and get them under control.
Why I Am Running
My son wakes up every day and takes a handful of pills. He may have already had a few seizures that disturbed his sleep. He has to will himself to get ready for school. He eats his high fat, mayonnaise and soy flour donuts and drinks his vitamins that sometimes upset his stomach. The drugs kick in and his brain swims in mind-altering medicine. His school is crowded, loud, and hard, but he walks through those doors and up those stairs and waves back at us as he passes through the glass atrium with a smile.
I’m running for my son. I’m running for that smile. I wanted to do something hard because he runs a marathon every day. I want to see my son at the finish line and tell him that I did it for him.
This year, I’m also running as part of the Athletes vs Epilepsy team to raise awareness about epilepsy and to run for those that can’t. If you are looking for a way to support the Epilepsy Foundation or if you enjoy reading about our journey and want a way to show your support, please make a donation below.
Please support this cause by making a safe and secure donation to my fundraising webpage. Giving to the Epilepsy Foundation means you make the world a better, easier, more manageable place for the 3 million people in the U.S. who are living with epilepsy and seizures.