As a participant of Athletes vs Epilepsy, I am competing in an Olympic Distance Triathlon to raise money for the Epilepsy Foundation.
We could use your generosity and philanthropic efforts to raise $10,000 before August 25, 2019.
The epilepsy foundation (epilepsy.com) is a leader in driving research, innovation, and support to improve the life of those living with epilepsy. To date the Epilepsy Foundation has helped fund over 65 new therapies. Despite recent treatment improvements, in the EF’s 2016 Community Survey, an overwhelming majority of respondents, regardless of seizure frequency and type, selected unpredictability of seizures as a top issue.
In October 2018 the Epilepsy Foundation was able to award a $3 million grant to an international team of scientists, researchers, and interoperability experts to evaluate biosensor that can track an individual’s physiology, behavior, and environment to improve seizure prediction. The vision for this project is to evaluate biosensors leading up to a seizure, mine the data, and uncover new clues about what changes in the body in the before a clinical seizure is observed. Details about the grant can be found here: https://www.epilepsy.com/release/2018/10/epilepsy-foundation-awards-3-million-grant-international-team-scientists-improve.
Seizures are among the most common neurological disease worldwide, yet funding is well below average when compared to other neurological diseases. With your help, I am hopeful we can raise an amount of money that can positively impact people living with epilepsy.
50+ million people worldwide have epilepsy;
1 in 10 will have a seizure in their life time;
Seizures are among the most common neurological diseases worldwide
In 2018 four products that received seed funding by the Epilepsy Foundation have reached the marketplace and received regulatory approval. The FDA approved: Embrace, Epidiolex, Visualase, and Zeto.
Despite recent medical advancements one third of all people with epilepsy continue to have uncontrolled seizures