Hi, my name is Emily. I am a university student studying to be a nurse. In my free time I can be found running, reading, playing with my dog, hanging out with friends/family, dancing like no one is watching, hiking, doing yoga/working on my fitness, watching Netflix comedy specials, and finding adventures. I was diagnosed with epilepsy two weeks before my sixteenth birthday which means part of my day revolves around managing my seizure triggers. This includes getting enough sleep, managing my stress, taking my medications, and following the low-carb diet I need.
I have had amazing friends and family support throughout my epilepsy journey. Above, is a picture from a spring break service trip I was able to go on through my university. Purple Day (March 26) was one of the days of our trip. I told everyone my story and they were very supportive of not just me but the cause of epilepsy awareness and acceptance. We all wore purple on March 26 to show our support.
Through my university, I was able to become a member and eventually president of the club Student Awareness for Epilepsy. Our club was able to attend the 12th Annual National Walk for Epilepsy. Pictured above is my dog Cooper in the cape I got at the walk, as the walk's theme was #MyEpilepsyHero.
Although it is not something I like to discuss, I have been hospitalized frequently due to my seizures and the clusters that sometimes occur.
I may have epilepsy, but epilepsy does not have me. Above is a picture of me and my sister (who also happens to have epilepsy) doing a local Epilepsy Foundation's 5k.
This November I will be participating in a half marathon with Athletes vs. Epilepsy a nationwide program for athletes of all ages and levels, coaches, volunteers and fans. The goal is to raise awareness, build participation, and help fund the Epilepsy Foundation’s mission to stop seizures and SUDEP, find a cure, and overcome the challenges created by epilepsy through efforts including education, advocacy, and research to accelerate ideas into therapies. The initiative helps to bring epilepsy awareness to all sports through participation by athletes of all ages and skill levels as well as their supportive friends, family, and fans.
Thank you for reading my story and I hope you consider donating.