My son, Jonah, was two when he was first diagnosed with epilepsy. Then, at the age of five, my husband and I learned that he has a rare epileptic encephalopathy syndrome called CSWS/ESES. Jonah is now a few months shy of turning eight, and since the onset of his seizure syndrome, we've witnessed many changes to Jonah. He's still the most incredible kid, but his sparkle isn't always present. He's regressed academically, emotionally, and socially. The seizures, and the syndrome, and the medications have attempted to steal our son. They are unrelenting, persistent and unresponsive to all the therapies available to him (medications, diet, etc).
Running helps me manage Jonah's seizures; it helps me to understand, to accept, to persevere, and it also gives me a purpose. By joining and becoming an Athletes vs Epilepsy team member, I committed myself to their mission: to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. I've committed to raising funds for the Epilepsy Foundation to help them reach these goals. I will run the Philadelphia Half-Marathon in honor of Jonah and of all the individuals, families, friends, and communities that are affected daily by epilepsy.
Please support this cause by making a safe and secure donation to my fundraising webpage. Giving to the Epilepsy Foundation means you make the world a better, easier, more manageable place for the 3 million people in the U.S. who are living with epilepsy and seizures.
Thank you for your help and support and for constantly proving that we are not alone in our efforts!