We are raising funds to make a difference in the lives of people living with epilepsy. The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
Some will know of our last 3 years, some have just gotten a glimpse into it and some may have no idea. It’s no reflection on our love for our relationships but more on my own inability to speak to this without sinking. A sense of survival, I suppose.
Emmett had his first seizure at 2 1/2 years old nearly 3 years ago. As with many families, at that time he was diagnosed with a febrile seizure and assured of the common albeit terrifying occurrence. But as time continued, so did the variety of seizures/occurrences/degrees, ambulance rides, ER visits, hospital stays, CT/MRI/EEGs/EKG and yet we were left with no explanations.
Shortly before having Shelby, I found Emmett face down seizing after I ran to the bathroom (talk about mom guilt). We had experienced a fair number of seizures at this point and I ran through countless scenarios. As silly as it sounds, I was feeling confident this go around. I made sure he was clear of any hazards, ran my massively pregnant butt to retrieved medicine, administered it and placed a call to his peds/neurologist all while waiting for him to come to. Then it all changed. He began seizing again. A call to 911 and waiting for what felt like an eternity (and it was... thanks to a train), we were yet again on our way to the hospital. We were once again faced with the unknown and slapped back into reality that when you think you are prepared, think again.
I can talk of these events now as I have finally begun to process our experiences without experiencing life shattering fear. I can finally speak without reservation, crying and being shrouded in fear/guilt. But I’d be lying if I didn’t say it does helps that I can finally say...Emmett has been seizure free for nearly 1 ½ years! Has he outgrown them or is the daily medication stopping them? We can’t really say until we start to wean off the medication and pray the streak continues.
This is our life. Seizure preparedness has become a part of our lives as much as brushing our teeth as it is with so many other families. I know things can change and I know we aren’t faced with the most severe situation. I suppose I look at this as some sort of a cathartic thing after a long silence.
If you would like to join us April 13th, we’d love to have you! If you’d like to donate, please follow the link below. This is our normal right now and maybe just maybe leaps and bounds can be made for a cure for so many.
Please support this cause by making a safe and secure donation to our fundraising webpage. Giving to the Epilepsy Foundation means you make the world a better, easier, more manageable place for the 3 million people in the U.S. who are living with epilepsy and seizures.
Thank you for your help and support
Headquarters Address: Epilepsy Foundation
8301 Professional Place, Landover, MD 20785-2353