When my son Cameron was six months old he began having "episodes" which were later identified as seizures. In April of 2011, Cam was officially diagnosed with epilepsy. Just after his first birthday, he had a seizure that was very different than any other we had seen before. His doctors told us he was having Focal-Motor seizures and Complex-Partial seizures. You can read more about our journey with testing, medications, brain surgery and recovery in my (once active) blog: http://milesandmiracles.blogspot.com/2013/08/
Cameron ran is first 5K at the CHaD HERO on October 14, 2018
In January 2019, we celebrated Cameron being one year seizure-free for the first time in his life. Seven days later, a seizure that left Cam unresponsive, landed us in the ER and eventually up at the Children's Hospital at Dartmouth (CHaD), ended the streak and snapped us back to reality, that this is a battle we face every day. After some medication adjustments, we continue to chug along and take things day by day.
The first time I signed up for a road race was St. Patrick's Day in 2013, along with about 10 other family members. We created a GoFundMe Page to raise money for the Epilepsy Foundation. I don't know how much we raised, but it kick-started a new lifestyle for me and a way to give back to some incredibly deserving charities. For the first time, I've been given the opportunity to run as a part of a team for The Epilepsy Foundation, called Athletes vs. Epilepsy! I will be running the Marine Corps Marathon on October 27th, 2019. My whole heart is in this and I'm excited to bring everyone along on another marathon training journey!
Athletes vs. Epilepsy is a nationwide program for athletes of all ages and levels, coaches, volunteers and fans. The goal is to raise awareness, build participation, and help fund the Epilepsy Foundation’s mission to stop seizures and SUDEP, find a cure, and overcome the challenges created by epilepsy through efforts including education, advocacy, and research to accelerate ideas into therapies. The initiative helps to bring epilepsy awareness to all sports through participation by athletes of all ages and skill levels as well as their supportive friends, family, and fans.
The Epilepsy Foundation is dedicated to ensuring that people with epilepsy can experience all that life has to offer. Athletes vs. Epilepsy affirms this positive message and embodies it through action and the belief that anyone, regardless of athletic talent, can help to fund raise and raise awareness.