One in 10 people will have a seizure in their lifetime.
Some people have multiple unprovoked seizures. This is called epilepsy. Over 65 million people on Earth have epilepsy. I am one of these 65 million people.
I was diagnosed 4 years ago, at the age of 34. This diagnosis came as a shock- I'd been blessed with health all of my life. I've also been blessed with an amazing family- but this is a life lesson that is challenging for my husband and sons, all of whom have had to watch me have seizures. I've also been blessed with knowledge given my years in healthcare, and so thankful to be able to reach out to others with this diagnosis. I've learned there is a common theme among my epilepsy community.
This diagnosis is incredibly lonely. It is a daily battle with medication side effects. It is fear invoking, not knowing when another seizure will happen. People feel shameful for something that is out of their control.
It's time to change all of this. I'm raising money to further research into the cause behind a widespread medical condition that is not well understood. It's time to stop the stigma that so many feel regarding this diagnosis. It's time to provide funding for research to find alternatives that are not accompanied by a multitude of short term and long term side effects. It's time for both epilepsy patients and their families to have the emotional support they deserve.